Monday Blog of Accountability Part 4 – Being Held to Account

  • On June 10, 2024 ·
  • By ·
Sheet of paper in a typewriter with the words "Write something" typed on it

Where Have You Been?

Sorry for the lack of blog posts lately. I’ve been trying to write them on Sunday so they publish on Monday. My wife’s job bumped her schedule ahead several hours, which has been rough on her sleep disorder. (We suspect it’s something like Delayed Sleep Phase Syndrome (DSPS)) Then we went on a weekend trip to the states. That, coupled with a tight deadline to submit immigration stuff, basically torpedoed my attempts at routine.

If I’m being 100% honest, “routine” is a rather tenuous term. On a good day I’ll get up at 5 AM, shower, then spend a few hours in my office while the house is quiet. Eventually it’s time to help Solange wake up and bring her coffee. By afternoon I tend to grab a nap. Evenings we’ve all been trying to clean and organize the house together. Some days are better than others. We live in a neurodivergent house where all three of us have our own particular blend of ADHD. (Remember I’m not a doctor and am only sharing my experiences dealing with neurodivergence. If you suspect you may need help please seek out and speak with a professional)

https://www.tiktok.com/@adhd_love/video/7335500663528508704
We Live in a Neurodivergent House via adhd_love on TikTok

As the lone housemate on the Autism Spectrum I’m learning how my AuDHD differs. I’ll often quote Red from the Shawshank Redemption (1994) because of my reputation as a man who knows how to find things. I remember where we put stuff, can usually spot lost items at a glance, and sort like objects together. These are the upsides when properly rested, medicated, and on schedule. When things are off balance for me I feel a bit like an NPC walking into a wall.

Alan Wake NPC GIF via Tenor

Routines keep a lot of us on track due to simple inertia. For me they can be a sequence of tasks I perform. Having to remember too many steps or being out of sorts leads to me trying them out of order, missing some, etc. I’ve had to warn people not to overload me or else I might show up forgetting to put on pants.

I’m often of two minds on things. There’s the logical adult who thinks things should be straight forward. Then there’s the impulsive ADHD kid who comes out and wants to do something other than what the adult planned. Sometimes he can be placated by allowing him to daydream, playing a YouTube video on the diversion while doing the day’s work. Sometimes we lean into the other thing if it’s productive or need a break. Other times he makes the adult doubt himself. Am I certain this is the right thing to be working on today? Absolutely certain in my ability to deliver? Better be or he’ll sow that seed of doubt. Add into that my troubles shifting gears when I’ve been doing one thing for an extended period of time and it’s easy to throw a monkey wrench into plans.

I’ve been on Vyvanse since my doctor suggested it a few years ago. It’s similar to Adderall but tends to last a bit longer with less of a noticeable drop-off. Some people report intense hyper-focus on it, which I’d say is accurate. It can be very easy to fixate on the wrong thing when it kicks in. That’s why I think it’s important to treat dealing with ADHD like exercise with conditioning. I intentionally journal, attempting to figure out what I want/need to be doing. Then I try to set myself up for success, getting rid of distractions and putting myself in the best place to work.

ADHD but medicated via Ice Cream Sandwich on YouTube

None of this is an excuse, of course. Simply an explanation of the issues that crop up when managing your own time and projects. I’m still sorting out what to focus on since it seems most of the things I try doing get too big. This is probably scope creep (also called requirement creep, or kitchen sink syndrome). I lose sight of the original goal and start concocting an epic worthy of Homer. Then I get intimidated by my ambition. The more I think about it, the more this explains my issues with getting out of defense mode.

What is Aspergers via Aspergers Experts on YouTube

What’s Today’s Fixation?

I’m glad you asked! Like a lot of people right now I’m unhappy with the direction the internet has been going. A handful of social media apps have superseded the web. (This guy with a cool name writes about concepts such as Aggregation Theory, the idea that sites like Facebook aren’t platforms but rather aggregators of content from elsewhere, selling the attention of their users to advertisers without providing anything of value themselves) You might remember the Oatmeal comic about FB charging to promote content to a handful of your followers. In short: billionaires ruin everything.

I don’t expect to totally reverse the last 20+ years of enshittification. That’s just not realistic. I’m some dude online. There are people who have effectively kill screened capitalism. Instead, I’d rather focus on making my little corner of the web better. I’ve been tinkering, off and on, with a site that brings back the fun of the old web using modern tech.

Remember Flash Cartoons?

Joe Cartoon, Homestar Runner, Homestuck, Newgrounds… Yes, it’s all coming back like a fever dream. Flash is something of a metaphor for the internet, when you think about it. Lots of potential depending on who wields it; often buggy, broken, dangerous; neglected and not taken seriously by enough people; declared dead except for niche circles. It was meant to be replaced by HTML5, which never really happened. Nathalie Lawhead has written and spoken about the death of Flash pretty thoroughly if you’d like to dive into the reasons behind it.

My goal is to recreate the fun, excitement, and experimentation of this early era. There’s obviously going to be risks involved. Things may break. Being on the cutting edge raises questions of security and future obsolescence. To alleviate what I can I’ve been looking into flat-file content management systems. At the moment I’ve been kicking the tires on the latest version of Automad. It’s designed for styling and formatting content, letting me customize each individual page while managing the over-all look of the site.

Mental Health

  • On April 15, 2024 ·
  • By ·
Mental Health on Scrabble tiles

I considered titling this one “Attention Deficit Hyperactivity Disorder (ADHD) and Asperger’s Syndrome/Autism Spectrum Disorder (ASD)” but that’s a lot to take in all at once and probably why my therapist didn’t lead with it.

Disclaimer

I’m by no means an expert on mental health. If you’re dealing with issues, please seek out a professional. And if that professional isn’t a proper fit, seek a second opinion, just as you would with any healthcare provider. This is my own experience looking for answers and what has worked for me.

Attention Deficit Hyperactivity Disorder (ADHD)

I’ve written before about my ADHD. Growing up I went undiagnosed for various reasons. Being a good student didn’t fit the image most people had at the time. Also the stigma against having something “wrong” with you, especially mentally, is very real. My family haven’t had the best experiences with doctors, to say the least, and actively distrusted counselors/therapists. I don’t really hold this against them as the American healthcare system is broken and mental health services are abysmal. It simply made navigating this all as an adult difficult. Especially when so many resources these days are about treating your ADHD child. :V

The CliffsNotes are I have attention regulation and prioritizing issues. If something isn’t engaging I can literally blank it out. (When I was younger I tried several times to watch the movie Batman (1989). I’d get as far as the hoodlums saying “they call him The Bat” and next thing I knew it’d be at the credits rolling.) On the opposite end, if something is engaging and new I can hyper-focus. Meaning I’ll lose track of time, forget to eat, be unable to sleep, completely consumed until the novelty is worn off.

Asperger’s Syndrome/Autism Spectrum Disorder (ASD)

Asperger’s Syndrome has actually been phased out in favor of rolling it into Autism Spectrum Disorder. Johann Friedrich Karl “Hans” Asperger, the Austrian physician who first identified the condition in 1944, had problematic ties to Nazi Germany and eugenics. For our intents and purposes, Asperger’s is viewed as less severe symptoms than Autism, with little to no language or cognitive troubles, (some testing even higher than average) but issues with social skills. It’s gotten the nickname Little Professor Syndrome due to those afflicted having intense special interests they can often have one-sided conversations on. This short video by Danny Raede of Asperger Experts is a good introduction:

I also want to share this one he did on the sensory funnel, which addresses issues of overwhelm and getting somebody with Asperger’s out of Defense Mode.

When I originally asked my doctor for help and started seeing a therapist I thought I had an anxiety disorder. I would have panic attacks, an ever-present feeling of stress hung over me like a flickering florescent light. There’s a scene in Man of Steel (2013) where school boy Clark Kent has to process and make sense of the world around him as he becomes overwhelmed by his super powers. He has a meltdown and hides in the classroom closet until his mother helps him focus. I’ve dealt with similar situations, lately when I experience a meltdown I think of Ironside from Kill Bill (2003-4).

Medication helped quiet the internal noise so I could begin to address outside influences more closely. I started journaling, becoming more aware of my environment while also trying to better read and understand my own responses. Mindfulness has become a buzzword these days but it is an actual thing we sometimes have to practice. Raede also has videos on panic attacks and dealing with stress I recommend watching. He mentions realizing he was more comfortable being stressed than being relaxed and working to change that. How stress doesn’t necessarily have to be a bad thing, that we can let sensations and emotions go through our bodies without feeling like we’re going to die.

What It’s Like Having Both

It’s often multiple similar conditions can occur at the same time, i.e. comorbidity. I recently stumbled upon this video by D.S.A. Threads Costuming which really hit close to home in a lot of ways.

The problem I’ve been struggling with most recently, I think, is getting out of Defensive Mode. That’s where I de-stress, listen to myself, and make decisions going forward. I’ve had a lot going on in my life the last couple years. Moving to another country, getting married, sorting out immigration matters, on top of regular daily concerns like household chores and worrying about finances. It can be very difficult for me to switch gears when I’ve been doing something consistently. I’m not renting separate office space to work outside the house anymore so my ability to isolate isn’t what it used to be. Plus I have trouble letting myself enjoy drawing for fear I’ll lose track of things. It’s important to allow myself time to play creatively so the ideas come out.